top of page
Need Help? Call the 24-hour Crisis line (Toll Free): 1-(800)-584-3578
Research Question 1
What systemic barriers exist to keep children, youth, and families from accessing needed services?
Question | Response |
|---|---|
What do you feel is not working in the overall System of Care? | Access to medication |
What do you feel is not working in the overall System of Care? | There’s often a lack of coordination between services, long wait times, and difficulty accessing consistent follow-up support. |
What do you feel is not working in the overall System of Care? | access to adequate health care |
What do you feel is not working in the overall System of Care? | Equitable Access |
What do you feel is not working in the overall System of Care? | Staff Commitment Despite challenges, many frontline workers show deep dedication, compassion, and professionalism. Their commitment keeps the system running and provides comfort and trust to those receiving care. |
What do you feel is not working in the overall System of Care? | Inadequate crisis response and emergency services |
What do you feel is not working in the overall System of Care? | Stereotypes |
What do you feel is not working in the overall System of Care? | Long Wait Times and Bureaucracy Delays in scheduling appointments, getting approvals, or navigating paperwork frustrate both clients and providers, sometimes discouraging people from seeking help at all. |
What do you feel is not working in the overall System of Care? | Compassion, humanity, dignity, barriers |
What do you feel is not working in the overall System of Care? | I can't think of anything that is not working. |
What do you feel is not working in the overall System of Care? | Short-term funding cycles that cause valuable programs to end prematurely. |
What do you feel is not working in the overall System of Care? | It would help to have more consistent support, especially during transitions between youth and adult services. |
What do you feel is not working in the overall System of Care? | Insurance and cost barriers. |
What do you feel is not working in the overall System of Care? | I’m frustrated by the 6–12 month waitlists for gender affirming therapy. Some staff still use outdated language because training isn’t consistent. Funding feels siloed mental health, housing, and education programs rarely talk to each other. And in rural counties where I travel, family acceptance programs simply don’t exist. |
What do you feel is not working in the overall System of Care? | Lack of family voice in decision-making and program design. |
What do you feel is not working in the overall System of Care? | Staff Shortages and Burnout There are not enough trained professionals to meet demand. Overworked staff can’t always give the attention and time clients deserve, which affects quality and morale. |
What do you feel is not working in the overall System of Care? | Limited training for professionals on trauma-informed and culturally sensitive practices. |
What do you feel is not working in the overall System of Care? | Fragmented services,limited access and affordability |
What do you feel is not working in the overall System of Care? | Inconsistent follow-up after discharge or program completion. |
What do you feel is not working in the overall System of Care? | The cost is too high and should be checked |
What do you feel is not working in the overall System of Care? | Expenses |
What do you feel is not working in the overall System of Care? | Everything acting like they know better |
What do you feel is not working in the overall System of Care? | Stigma and misunderstanding about mental illness, addiction, or disability. |
What do you feel is not working in the overall System of Care? | Caregivers may not receive the support and resources they need to care for their loved ones, leading to burnout and decreased quality of care. |
What do you feel is not working in the overall System of Care? | Access can be inconsistent, with long wait times and gaps in specialized care. Navigation is often confusing for families, and some communities lack culturally responsive services or support for marginalized youth. Communication between agencies could also be improved. |
What do you feel is not working in the overall System of Care? | Reactive systems that focus on crisis response instead of prevention and early intervention. |
What do you feel is not working in the overall System of Care? | Affordability |
What do you feel is not working in the overall System of Care? | Long wait times, difficulty navigating resources, and lack of culturally specific support in some areas. |
What do you feel is not working in the overall System of Care? | Insufficient mental health resources, especially for youth and families. |
What do you feel is not working in the overall System of Care? | The people who are judgmental about people and don’t know how to handle their cases |
What do you feel is not working in the overall System of Care? | The Inability to be functional frequently |
What do you feel is not working in the overall System of Care? | Limited Access and Inequality Access to quality care often depends on income level, insurance status, or location. Rural and low-income areas face more barriers, creating gaps in fairness and service quality. |
What do you feel is not working in the overall System of Care? | Overly complex paperwork and referral processes that frustrate families. |
What do you feel is not working in the overall System of Care? | Affordability |
What do you feel is not working in the overall System of Care? | Time to care |
What do you feel is not working in the overall System of Care? | What’s not working is the lack of consistent follow-up and the complexity of navigating services, which can overwhelm families. Delays in evaluation and limited access to specialized care also make it hard for individuals to get timely, appropriate support. |
What do you feel is not working in the overall System of Care? | Access and follow through are still big challenges. Families often face long waitlists or have to repeat their story to different providers because systems don’t communicate well. There aren’t enough culturally responsive or trauma-informed services, and too many programs end just when stability starts. |
What do you feel is not working in the overall System of Care? | Communication and coordination need improvement |
What do you feel is not working in the overall System of Care? | Unequal access to services for rural, low-income, or minority populations. |
What do you feel is not working in the overall System of Care? | Technology in the system |
What do you feel is not working in the overall System of Care? | There’s a shortage of bilingual and culturally matched providers. Non-English-speaking families struggle to navigate care. |
What do you feel is not working in the overall System of Care? | Access and equity gaps |
What do you feel is not working in the overall System of Care? | Stigma and lack of cultural support |
What do you feel is not working in the overall System of Care? | Insufficient funding and resources |
What do you feel is not working in the overall System of Care? | Limited funding and staff shortages, leading to burnout and reduced quality of care. |
What do you feel is not working in the overall System of Care? | Lack of Coordination Even with improvements, many parts of the system still operate in silos. Information sharing between providers and agencies can be slow or incomplete, leading to fragmented care. |
What do you feel is not working in the overall System of Care? | Liberal |
What do you feel is not working in the overall System of Care? | Nothing at all they really know what they are doing |
What do you feel is not working in the overall System of Care? | Communication between agencies often breaks down, leading to duplicated or missed services. Youth can feel lost in the system. |
What do you feel is not working in the overall System of Care? | Racial Profiling |
What do you feel is not working in the overall System of Care? | Funding for more buildings |
What do you feel is not working in the overall System of Care? | Many families still face long wait times for behavioral health appointments. Delays can worsen a young person’s condition |
What do you feel is not working in the overall System of Care? | Support |
What do you feel is not working in the overall System of Care? | Accessibility |
What do you feel is not working in the overall System of Care? | What I feel is not working well in the overall system of care is the lack of coordination and consistency across different services. Many people still fall through the cracks because agencies don’t always communicate effectively with each other. |
What do you feel is not working in the overall System of Care? | The System of Care is hindered by funding constraints, fragmented services, workforce challenges, limited access to specialized services, and systemic disparities, which compromise its ability to deliver comprehensive and coordinated care. |
What do you feel is not working in the overall System of Care? | Workforce shortages and burnout |
What do you feel is not working in the overall System of Care? | The cost is overwhelming |
What do you feel is not working in the overall System of Care? | The banking funding and facilities |
What do you feel is not working in the overall System of Care? | Gaps in continuity and slow response time |
What do you feel is not working in the overall System of Care? | Lack of Coordination and Communication: Programs sometimes work in silos, leading to duplicated efforts or families falling through the cracks. |
What do you feel is not working in the overall System of Care? | Not enough providers and difficult to navigate the system when parent/advocate has neurodivergence as well |
What do you feel is not working in the overall System of Care? | Long waiting lists for therapy, assessments, or specialized programs. |
What do you feel is not working in the overall System of Care? | not accurate information |
What do you feel is not working in the overall System of Care? | Limited resources and inconsistent coordinate |
What do you feel is not working in the overall System of Care? | Long wait times, difficulty navigating resources, and lack of culturally specific support in some areas. |
What do you feel is not working in the overall System of Care? | Long wait times and lack of coordination between services. |
What do you feel is not working in the overall System of Care? | Workforce shortages and burnout |
What do you feel is not working in the overall System of Care? | There is a critical shortage of primary care physicians, mental health professionals, and specialists in many regions, leading to long wait times and delayed diagnoses. |
What do you feel is not working in the overall System of Care? | Disparities in care for marginalized communities |
What do you feel is not working in the overall System of Care? | Long wait time and lack of follow up support |
What do you feel is not working in the overall System of Care? | Consistency |
What do you feel is not working in the overall System of Care? | The system is fundamentally structured to treat illness (reactive care) rather than to promote wellness and prevent disease (proactive care), leading to more expensive and less effective long-term results. |
What do you feel is not working in the overall System of Care? | I think the level of environmental friendliness should be worked on. |
What do you feel is not working in the overall System of Care? | Communication gaps between programs, delays in service delivery, and lack of follow-up make it hard for families to get consistent support. |
What do you feel is not working in the overall System of Care? | Administrative burden |
What do you feel is not working in the overall System of Care? | The funding sector and the facilities department |
What do you feel is not working in the overall System of Care? | Long wait time for appointment and procedures. |
What do you feel is not working in the overall System of Care? | Crowd control. |
What do you feel is not working in the overall System of Care? | lack of cultural competence and diversity among providers |
What do you feel is not working in the overall System of Care? | Economy |
What do you feel is not working in the overall System of Care? | Individual with complex or chronic conditions may require more comprehensive and coordinated care which can be challenging for the system to provide |
What do you feel is not working in the overall System of Care? | They do not have the adequate funds, staff, and resources |
What do you feel is not working in the overall System of Care? | High cost of care |
What do you feel is not working in the overall System of Care? | Limited access to specialized care, especially in rural areas |
What do you feel is not working in the overall System of Care? | Schedules |
What do you feel is not working in the overall System of Care? | Long await times and limited appointment availability |
What do you feel is not working in the overall System of Care? | Fragmented systems |
What do you feel is not working in the overall System of Care? | Getting the word out, communicating resources at school loud and proud not sweeping it under the rug. Lots of work still needs to be done to destigmatize youth BH/MH |
What do you feel is not working in the overall System of Care? | The programs are not easily accessible |
What do you feel is not working in the overall System of Care? | The laws placed on the LGBTQ by the government. |
What do you feel is not working in the overall System of Care? | Understaffed facilities and overwhelmed workers leading to burnout and rushed care |
What do you feel is not working in the overall System of Care? | Long wait times — delays in getting appointments, approvals, or resources. |
What do you feel is not working in the overall System of Care? | The cost of care, there have been an increase in health care cost |
What do you feel is not working in the overall System of Care? | I feel everything is working fine |
What do you feel is not working in the overall System of Care? | The lack of under peoples needs. |
What do you feel is not working in the overall System of Care? | They arent targeting the right communities |
What do you feel is not working in the overall System of Care? | The systems do not have as much needed collaboration. |
What do you feel is not working in the overall System of Care? | There is a lot. There is not nearly enough access to care. There is also not enough standard education for children or parents in maintaining good mental/emotional/behavioral health, it should be taught as part of our fitness/health curriculums all the way through school. Maintaining behavioral health and understanding the things we need to do and possessing the skill set to do so is just as important is maintaining physical health. |
What do you feel is not working in the overall System of Care? | It’s hard to get fast availability or new patient appointments |
bottom of page