Research Question 1

What do you feel is not working in the overall System of Care?

Greed

What do you feel is not working in the overall System of Care?

There is low mental support.

What do you feel is not working in the overall System of Care?

Complexity

What do you feel is not working in the overall System of Care?

Many or most people not having access due to the expenses of getting a care giver

What do you feel is not working in the overall System of Care?

Showing sympathy

What do you feel is not working in the overall System of Care?

unprofessionalism

What do you feel is not working in the overall System of Care?

The percentage of the working force in the system of care is not balance. And that needs to change to accommodate more people to feel comfortable to receive care.

What do you feel is not working in the overall System of Care?

Sympathy

What do you feel is not working in the overall System of Care?

Coordination

What do you feel is not working in the overall System of Care?

Limited access in rural areas

What do you feel is not working in the overall System of Care?

lack of empathy amongst workers

What do you feel is not working in the overall System of Care?

Accessibility

What do you feel is not working in the overall System of Care?

However, there are still areas that need improvement. Access to care is one of the biggest challenges — many people can’t afford services or live in areas where help isn’t available. The system can also be overwhelmed and understaffed, causing long waiting times and burnout among caregivers. Sometimes, the care provided focuses too much on short-term treatment instead of long-term recovery and support. There’s also still stigma around seeking help, especially in some communities, which stops people from reaching out early.

What do you feel is not working in the overall System of Care?

Showing sympathy

What do you feel is not working in the overall System of Care?

One major challenge in the system of care is limited access due to long wait times, high costs, and provider shortages. Many people struggle to get timely help, especially in underserved areas. There’s also a lack of coordination between different services, which makes navigating care confusing. Additionally, stigma and judgment still prevent some from seeking support, and sometimes care feels too standardized, missing the unique needs of individuals. These gaps make recovery harder than it needs to be.

What do you feel is not working in the overall System of Care?

Fragmentation

What do you feel is not working in the overall System of Care?

Access to resources to aid recovery

What do you feel is not working in the overall System of Care?

Selfishness

What do you feel is not working in the overall System of Care?

Lack of communication

What do you feel is not working in the overall System of Care?

. Fragmented systems: Communication gaps between departments or providers can lead to poor coordination

What do you feel is not working in the overall System of Care?

Lack of professional and expertise to care for people

What do you feel is not working in the overall System of Care?

Emotional Support: Being there to listen without judgment, offering encouragement, and validating their feelings can make a big difference. Emotional support can also include helping them cope with setbacks or relapses in a compassionate way.

What do you feel is not working in the overall System of Care?

Delays and inefficiency

What do you feel is not working in the overall System of Care?

Reliable and accurate

What do you feel is not working in the overall System of Care?

unequal access

What do you feel is not working in the overall System of Care?

Efficiency

What do you feel is not working in the overall System of Care?

Many aspects of the overall system of care for individuals in recovery face challenges due to inconsistent access to services, stigma around addiction, and a lack of individualized treatment plans that address personal needs.

What do you feel is not working in the overall System of Care?

support for language, disability, or trauma-informed care --- 3. *Poor Coordination* - Services (mental health, medical, social) often don’t communicatPatients are left to connect the dots themselves

What do you feel is not working in the overall System of Care?

Some LGBTQ+ people still experience bias, microaggressions, or misgendering from staff, which can lead to mistrust and avoidance of services.

What do you feel is not working in the overall System of Care?

Unavailability of enough service providers

What do you feel is not working in the overall System of Care?

There are still gaps in follow-up, long wait times, and inconsistent communication.

What do you feel is not working in the overall System of Care?

In my experience, I feel like navigation of the System of Care is not working smoothly. I think the pathways to different services are confusing, and it's hard for me to know where to go for what I need. I end up having to figure out a lot on my own. I believe clearer guides or more support in navigating the system would help me access care more effectively and efficiently for my needs personally

What do you feel is not working in the overall System of Care?

Understaffing and burnout: Health workers often face long hours and stress, affecting quality of care

What do you feel is not working in the overall System of Care?

*35.* What’s working: Access to basic services, such as mental health counseling and communWhat’s not working: Long wait times for specialized care, lack of culturally competent services, and limited follow-up or continuity of care after initial treatment often lead to gaps in recovery and support.

What do you feel is not working in the overall System of Care?

Long wait times, limited availability of services, and lack of clear communication between providers are major issues.

What do you feel is not working in the overall System of Care?

It's cooperation

What do you feel is not working in the overall System of Care?

In my experience, another challenge in the System of Care is the lack of personalized support. I feel like my needs and preferences aren't always considered, which can lead to care that doesn't fully address my goals. I think more tailored approaches and shared decision-making would make a significant difference in my care experience and outcomes.

What do you feel is not working in the overall System of Care?

Caregiver burnout crises

What do you feel is not working in the overall System of Care?

Funding and support for long-term care programs are limited, leading to gaps in service

What do you feel is not working in the overall System of Care?

There are still gaps in follow up, long wait times, and inconsistent communication.

What do you feel is not working in the overall System of Care?

In my experience, I feel that fragmentation of services is not working in the overall System of Care. I think providers sometimes operate in silos, making it hard for me to navigate care. I find myself having to bridge gaps between services. I believe better coordination and communication among providers would help me get more cohesive and effective care personally.

What do you feel is not working in the overall System of Care?

Communication between certain agencies can be inconsistent or unclear.

What do you feel is not working in the overall System of Care?

Integrity

What do you feel is not working in the overall System of Care?

Unmanageable costs and financial barriers

What do you feel is not working in the overall System of Care?

Coordination

What do you feel is not working in the overall System of Care?

High costs and insurance barriers making care unaffordable.

What do you feel is not working in the overall System of Care?

It’s hard to find consistent care or get appointments quickly. There’s too much waiting, and sometimes communication between providers, schools, and families isn’t strong enough, which makes it hard to keep track of progress.

What do you feel is not working in the overall System of Care?

Large embrace to most in need of care especially during scenes that demands so

What do you feel is not working in the overall System of Care?

I feel like fragmentation and lack of communication between different healthcare providers is not working in the overall System of Care. I think when my doctors don't talk to each other, it leads to duplicated tests, mixed messages, and sometimes even conflicting treatments. I also feel like navigating the system can be super tough, especially when I'm dealing with multiple conditions or specialists. I wish there was more coordination and a clearer path for me to get the care I need.

What do you feel is not working in the overall System of Care?

Still a 3-month wait for a psychiatrist. We bounce between three agencies and nobody knows what the others are doing. Paperwork hell every time.

What do you feel is not working in the overall System of Care?

What’s not working in many systems of care is that people often face long wait times, limited access to consistent providers, and care that focuses too much on symptoms rather than the person’s whole life, goals, and identity.

What do you feel is not working in the overall System of Care?

Some services still take too long to respond or follow up after referrals.

What do you feel is not working in the overall System of Care?

Disparities in access to care and resources existing based on socioeconomic, location and other factors..

What do you feel is not working in the overall System of Care?

I feel the system works for some people, but for many, especially those with limited resources or in rural areas.

What do you feel is not working in the overall System of Care?

Nobody tells you what happens after you call the crisis line. We got referred to three different places and none of them called back. Total runaround.

What do you feel is not working in the overall System of Care?

Delays in communication and resource allocation can sometimes hinder timely assistance.

What do you feel is not working in the overall System of Care?

Access to timely care remains difficult—long wait times, limited provider availability, and high costs continue to be major barriers.

What do you feel is not working in the overall System of Care?

Communication between different programs could be improved, as information doesn’t always flow smoothly. There can also be long waiting times for services and not enough follow-up after initial support.

What do you feel is not working in the overall System of Care?

Many people still struggle to access affordable care, especially in rural or low-income areas

What do you feel is not working in the overall System of Care?

Accessing care is rigid

What do you feel is not working in the overall System of Care?

While the System of Care has made progress, there are still several areas that need improvement. Many families struggle with long wait times, limited provider availability, and difficulty navigating a complex system

What do you feel is not working in the overall System of Care?

There are still gaps in follow-up services and communication between some agencies. Sometimes, families experience delays in getting help due to limited staff or unclear referral processes. More consistent training and stronger feedback loops could make the system even more effective.

What do you feel is not working in the overall System of Care?

Sometimes the program feel short of quality and under funded.

What do you feel is not working in the overall System of Care?

The system can be hard to navigate, especially for those managing multiple conditions or trying to coordinate between specialists.

What do you feel is not working in the overall System of Care?

Cultural or language barriers that limit access for diverse populations.

What do you feel is not working in the overall System of Care?

I think it’s difficult accessing and affording healthcare

What do you feel is not working in the overall System of Care?

Not asking for new ideas

What do you feel is not working in the overall System of Care?

Access, affordability, and communication between providers are still inconsistent across the system.

What do you feel is not working in the overall System of Care?

One issue that seems to not be working well is the lack of timely access to services. Long wait times, limited availability of providers, and gaps in follow-up care can make it difficult for individuals to stay engaged and supported throughout their recovery. There is also a need for more culturally responsive and trauma-informed care options.

What do you feel is not working in the overall System of Care?

demanding payment first

What do you feel is not working in the overall System of Care?

billings

What do you feel is not working in the overall System of Care?

The system feels disconnected — agencies don’t communicate well, and families often have to repeat their stories to multiple providers. Many youth, especially those from marginalized backgrounds, struggle to find culturally competent care and wait too long for meaningful support.

What do you feel is not working in the overall System of Care?

Many people hesitate to seek help due to stigma around mental health or addiction.

What do you feel is not working in the overall System of Care?

Churches

What do you feel is not working in the overall System of Care?

One issue that seems to not be working well is the lack of timely access to services. Long wait times, limited availability of providers, and gaps in follow-up care can make it difficult for individuals to stay engaged and supported throughout their recovery. There is also a need for more culturally responsive and trauma-informed care options.

What do you feel is not working in the overall System of Care?

Communication and follow-up between agencies need improvement

What do you feel is not working in the overall System of Care?

there's not enough adequate information to go round.

What do you feel is not working in the overall System of Care?

Long wait times for appointments and treatments.

What do you feel is not working in the overall System of Care?

Inadequate training and education for providers on emerging issues

What do you feel is not working in the overall System of Care?

While there have been improvements, access to timely care remains a major challenge. Long wait times, limited availability of providers, and complicated insurance processes often make it difficult for people to get the care they need when they need it.

What do you feel is not working in the overall System of Care?

Access to care can be limited, especially in rural areas or for those without insurance.

What do you feel is not working in the overall System of Care?

Wait times are too long when people are ready to seek help. The system is confusing to navigate, especially for first-time users. Better coordination between different providers would help prevent gaps in care. More upfront information about costs and available services would be helpful. Access to peer support earlier in the process would be beneficial.

What do you feel is not working in the overall System of Care?

The Wait times are still too long, communication between services isn't always smooth, and there aren't enough staff to meet the demand.

What do you feel is not working in the overall System of Care?

Inadequate mental health resources compared to physical health.

What do you feel is not working in the overall System of Care?

The system feels disconnected — agencies don’t communicate well, and families often have to repeat their stories to multiple providers. Many youth, especially those from marginalized backgrounds, struggle to find culturally competent care and wait too long for meaningful support.

What do you feel is not working in the overall System of Care?

The process through which individuals go through. I believe different things works for different people

What do you feel is not working in the overall System of Care?

More of racial profiling and discrimination should be stopped

What do you feel is not working in the overall System of Care?

Ignoring warning signs

What do you feel is not working in the overall System of Care?

Wait times to access initial services can be too long, which is difficult when someone is ready to seek help. The system can feel confusing to navigate, especially for first-time users who may not know where to start or what services are available. There could be better follow-up and continuity of care between different providers.

What do you feel is not working in the overall System of Care?

The workfore

What do you feel is not working in the overall System of Care?

Limited payment disbursement for caregivers

What do you feel is not working in the overall System of Care?

It needs a restructuring, to better satisfy the needs of every youth, regardless status or color.

What do you feel is not working in the overall System of Care?

Discrimination in the health care system

What do you feel is not working in the overall System of Care?

The cost of health. The insurance coverage, the time frame doctors spend time with patients very minimum.

What do you feel is not working in the overall System of Care?

What’s not working is how hard it can be to access care quickly, especially for those without good insurance. Long wait times, rushed appointments, and staff burnout also make the system feel stretched and less personal.

What do you feel is not working in the overall System of Care?

I think there needs to be more awareness on how people can access health services.

What do you feel is not working in the overall System of Care?

inadequacy

What do you feel is not working in the overall System of Care?

nothing

What do you feel is not working in the overall System of Care?

Short-term grants and lack of sustained funding make programs hard to maintain.

What do you feel is not working in the overall System of Care?

I feel the staffs should be further trained to be very nice to patients